The Discharge: Making the Transition to Home

The transition from the hospital to home is pivotal for a primary caregiver, especially when it’s your child, spouse or other loved one going home after a hospital stay. This was never more true for me at Catherine’s first discharge from the neonatal intensive care unit just 12 days after birth.  Catherine was bundled in […]

The Discharge: Making the Transition to Home

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Our Story, Part 4: The Road Ahead

The past twelve months had been the hardest of my life as Merle and I watched Catherine struggle to survive. But our girl was a fighter and after a year of numerous hospital visits, countless doctor appointments, sleepless nights and fearful thoughts, we celebrated her first birthday. It was a triumph for our family. But […]

Our Story, Part 4: The Road Ahead

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Our Story, Part 3: The Surgeries

Catherine had her first surgery when she was 5 ½ months old. Our cardiologist referred two surgeons to us and I remember how impressed Merle and I were with the first one. He put me at ease with his warm demeanor and I loved that he greeted Catherine, too. He was meticulous as he explained […]

Our Story, Part 3: The Surgeries

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Our Story, Part 2: The Delivery

I’d just learned that my unborn daughter had both Down syndrome and a serious heart defect, but I refused to live with fear and worry. Instead, I channeled my emotions into action. I’m a planner by nature and I needed to make sure that my house was in order, that I knew everything that would […]

Our Story, Part 2: After the Delivery Room

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Our Story, Part 1: Getting The News

My husband and I wanted a second child. We already had a beautiful 7-year-old girl, but we never felt complete. We were over the moon at the news of having another child and our daughter, Christina was excited to get a new sibling. Because of my advanced age, my gynecologist suggested visiting a high-risk OB/Gyn […]

Our Story, Part 1: Getting The News

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